From the World Cholangiocarcinoma Day website – http://worldcholangiocarcinomaday.org:
“On February 17, 2016, for the first time ever, we will unite around the world to raise the awareness of cholangiocarcinoma. Join us!
Cholangiocarcinoma is a devastating cancer with appalling survival rates due to late diagnosis and few treatment options. This disease is poorly understood and under researched, even though it is increasing in incidence globally. We believe collaboration is the way forward and, by supporting research for early detection and innovative treatments, we can help change the future for many people.
World Cholangiocarcinoma Day is an opportunity for all of us to unite and bring awareness to this disease. On February 17, 2016, we will begin a new era of hope for those diagnosed with cholangiocarcinoma.”
In 2012, there were no treatments or clinical trials available for someone like Joe with stage IV cancer and unresectable liver tumors. Doctors offered Joe chemotherapy based on what worked for pancreatic cancer. And the treatment did nothing to halt the aggressive disease that Joe had contracted.
By raising awareness and supporting research for early detection and development of treatments we can help make a difference for other people. Cholangiocarcinoma is an isolating disease and there is a great need for awareness and advocacy. Thank you for your support on the first World Cholangiocarcinoma Day.
Joe would be grateful for all our efforts to help relieve the suffering of others.